I have always said that the disease is bronchiosaurus. Honestly, it's not, but it's the easiest thing for me to say and spell. If I say it right, I think it's Bronchiectasis But even then I might be wrong.
Maybe it's Bronchiolitis Yikes, they really all sound the same and start out being described the same. Regardless, the disease is awful and it's slowing destroying his new lungs. The doctor at Henry Ford have talked to my Dad about the possibility of another double lung transplant. If they do, it would have to done in Cleveland and that is only if they find that his body and mind are strong enough to survive another transplant. Remember, he had a DOUBLE LUNG TRANSPLANT! Most people you hear about only have a single so they at least have one of their original lungs working. The man has been through so much already and it breaks my heart to see him in pain.
A few months back the transplant doctors explained that x-ray of his lungs are always going to look like he has Pneumonia One of the characteristics of the disease is that it scars the lungs and slowly takes away the lung capacity which is why he is now back on oxygen.
Before the transplant, that is what Dad wanted more than anything: Not to ever have to wear oxygen again. "I don't ever want to carry an oxygen tank again." That is what he told me. Six years later, he is.
How did this seminar on lung disease begin just now? Well, today around 11am I got a phone call from my Dad. He said that he woke up with a temperature and didn't feel quite right so he called Henry Ford and they said for the visiting nurse from Oaklawn in Marshall to come check him out. Not long after that, I got another call where he told me that an ambulance was on its way to take him to Jackson. I was to go down to Homer and get his hospital stuff around then head over to the hospital in Jackson.
There we were in the ER, again, waiting to find out test results and also what Henry Ford wanted us to do. Of course, it took four nurses getting two tries each to find the right vein to get his blood gas sample. OUCH! I could feel his pain. If you have never had a blood gas sample, count your lucky stars. So what is a blood gas draw? Good question. It's where they are looking at the CO2 levels in your blood to make sure your body is processing the oxygen properly. Look, WOO HOO, I didn't even have to give you a hyperlink for that one.
Well, a few hours into our visit and three inches into my knitting project. AH HA! So you wondered why I have a pick of some awful looking knitting project with a sick man in the background doing a breathing treatment? Well, now you know! I knit while I am at the hospital. What on earth did I ever do before when I had to spend all those countless hours in the hospitals with Dad.
So what am I knitting? My blue 10 inch square for the Hope Lodge Lap Blanket Project. Here are the requirements. You can join in an make a square too!
Summer Time Blues
Square-roughly 10 inches. Really, if it's not 10" it doesn't matter.
Machine wash and vaguely dryable-includes acrylic, Superwash wool and mixes there of
Crochet or Knit
Any shade of blue-any
Where will they go?They will be turned into Lap Robes and donated to Hope Lodge.
So I sat with my Dad in the ER knitting for someone else who will be in need of a loving lap blanket in the future. You see, my Dad got an awesome Lung Lovey from knitwithsnot for the days when he is chilled from not feeling good....like today. Except that his daughter, in all her awesome, left it on his recliner when she was packing his hospital stuff....but it will be right there where he can use it when he comes home.
So....lung lovey, lap robes, kidney kozies it doesn't matter. The point is to let people out there know you care and you can do it by knitting, crocheting, writing cards, sending flowers, baking cookies...you get the point.
So the wonderwhygal is knitting with love while she sits in the ER with her Dad because I have seen the wonder that a little bit of love can make for someone in the hospital.
REGISTER TO BE AN ORGAN DONOR!
Yikes! Can't you tell that being an organ donor saves lives....like my Dad!
Check out the cool Gift of Life link on the side of my blog. Really, after hearing my story don't you want to register yourself and then tell everyone else they should be a donor. I do!